Continuation of life as a sarcie

Me & Dr H Grobelaar(Dentist I worked For)

So I stopped my last post @ the point when my life changed and i became a lab rat. I say lab rat because i was passed from pillar to post from one specialist to another as the doctors really had no clue what the heck was wrong with me!!!!

Happy Healthy family before the Sarcoid

I was referred to a neurologist as the first symptoms i noticed was the complete numbness on the right side of my body.The doctors intially thought cancer or lupus but i thought no way!!! It cant be!!! My Boyfriend and my lil Diva attended the appointment with me as we didnt know what to expect. My appointment was for 9:30am but with the size of the JR being closer to a mall we were walking around aimlessly for half an hour. We finally found the place and were told to sit in the reception area for the nurse to get us when they were ready. Eva loved it, the hospital was a new and exciting place for her, she had never been to the hospital ever in her 2/3 years on earth(she was born @ home).

Superwoman!!!

To my suprise the nurse called my name and when I looked up to my suprise my nurse was an old school friend I hadnt seen since we'd left school. She said "I saw your name and thought surely there isnt another person with the same name but didnt think anything of it." We hugged, I introduced her to my daughter and boyfriend and as she led us through to a consultation room exchanged the usual pleasantries. We had to wait anxiously for about 15minutes so we thought we'd do the normal thing and snoop around the room. My boyfriend discovered that the bed moved up and down & then the fun began!!!! Weeeeeeeeeeeeeeee
Eventually a young doctor came in to see us and asked me to tell him why I was there and what had gone on for my doctor to refer me. I explained everything as best as  I could and then he decidec to examine me. Afterwards he informed me that I would have to go for an MRI scan so that they could see if they could pin-point what was going on.
The couple of weeks later I went for the MRI which found absolutely nothing suspicious on my scan so I was discharged. By this point my eyes were acting a fool(We couldnt have any lights on in the house if was in the room as the light really hurt my eyes, i was like a vampire always shielding myself from the light) and the chest pain was excruciating so I went back to see my doctor. In the meantime my half sister in South Africa was diagnosed with something called Sarcoisosis. On my next visit to the doctor I thought I should mention the fact that my half sister had just been diagnosed with something called sarcoidosis. I had never heard of this disease before so I didnt take any notice of it, but when I mentioned this to my Dr I saw an imagenery light bulb go off on top of her head. she explained that this could explain some of my symptoms like the tiredness and joint pain so she then refered me to the Sarcoid Clinic.

My eyesite started to deteriorate an an immense rate so I decided to go to the optometrist and have my eyes tested.I remember as a child I always fancied wearing glasses, I remember trying on my moms glasses every time she set them down on the table. I got my eyes tested and was told that I definetly needed glasses!!!!Great!!!! I had wanted them so bad as a kid coz i thought I would look great but I hadnt actually considered what it actually meant for my eyes. I chose a pair of glasses got them ordered and that was that.

At this point health was deteriorating. I was extremely tired all the time( I think my boyfriend thought i was just being lazy) I couldnt keep any food down so I was losing weight rapidly. I went down to 7and a 1/2 stone. I'm 5'7 and have always been skinny but this was ridiculous. My boyfriend bless him had so much to deal with, I dont think I considered what he was going through when this was going on. He did everything for me and tha Diva as I just couldn't physically or mentally, I had no energy always exhausted so all I would do was sleep. The next few months just went by as I slept my life away, I missed out on alot of things as I just couldnt muster up the energy to do anything and my poor baby knew that mommy wasnt well all the time but bless her the cuddles did help me feel better. I definetly think cuddles are the best medicine!!!

                                                   Me-looking ill, 7stone me-at my worst

TBC